1 in 500
Living with HCM
1 in 2,500
Born with Long QT Syndrome
At Least 600
Under age 35 die annually
50%
Reported warning signs

SADS Warning Signs

  • Fainting (syncope) or seizure during physical activity.
  • Fainting (syncope) or seizure resulting from emotional excitement, emotional distress, or startle.
  • Family history of unexpected sudden death during physical activity or during a seizure, or any other unexplained sudden death of an otherwise healthy young person.

Featured Publications

LQTS: An Information Booklet for Patients and Their Families

This booklet has been written in an easy to read, patient friendly format and provides excellent information for those diagnosed with LQTS.

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Long QT Syndrome in Women

As a woman with LQTS, your risk of experiencing symptoms may change at different stages of your life. Please read further...

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Cardiac Channelopathies: An Information Booklet for Patients and Their Families

This publication is an excellent summary of a wide range of cardiac channelopathies including LQTS, CPVT and others.

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Upcoming Events

Join us For a Patient Information Day

October 20, 2018

Please join us in Toronto October 20, 2018: Peter Munk Cardiac Centre, Toronto General Hospital

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Latest News

Arena defibrillator saves hockey player’s life

MIDLAND – The quick thinking of teammates – and ready access to an automated external defibrillator...

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Family Tree May Aid Treatment of Inherited Heart Disorders

(HealthDay News) — Researchers who used family trees dating back to 1811 to estimate the death risk for people with inherited heart rhythm disorders ...

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FDA Safety Alert regarding medications

The U.S. Food and Drug Administration (FDA) recently informed healthcare professionals and the public that preliminary results from a recently completed clinical ...

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