Follow us on Twitter Follow us on Twitter

I Have Been Diagnosed with an Inherited Heart Rhythm Disorder...What Do I Tell My Family?

If you've been diagnosed with a heart rhythm disorder such as:
 - Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
 - Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT)
 - Long QT Syndrome (LQTS)
 - Brugada Syndrome
to name a few of the inherited heart rhythm disorders, you have most likely been told that these conditions are potentially inheritable.  This means that other family members may be affected by the same condition you have been diagnosed with.

The following letters have been provided by Dr. Danna Spears from the Inheritable Arrhythmia Clinic of Toronto General Hospital. These letters are templates which are intended as a guide for you to use to notify other members of your family who may be at risk for inheriting the same heart condition you have. You can use either one of these templates and substitute for the medical condition that describes you and the contact information of the specialist who is treating you.

If you have been diagnosed with an inherited heart condition but have not had a positive genetic test result:
Click here to view template letter

If you have been diagnosed with an inherited heart condition and also have had a positive genetic test result:
Click here to view template letter


Please do not hesitate to contact The Canadian SADS Foundation if you have any questions or concerns:
Ph: 905-826-6303
Toll Free: 877-525-5995
email: info@sads.ca
 

Social Media Footer Links