My Genetic Test was Positive: What Do I Tell My Family?

My Genetic Test was Positive: What Do I Tell My Family?

If you've been diagnosed with a heart rhythm disorder such as:
- Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
- Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT)
- Long QT Syndrome (LQTS) - Brugada Syndrome
- Hypertrophic Cardiomyopathy (HCM)…
 
…to name a few of the inherited heart rhythm disorders, you have most likely been told that these conditions are potentially inheritable. This means that other family members may be affected by the same condition you have been diagnosed with. The PDF letter template has been provided by Dr. Danna Spears from the Inheritable Arrhythmia Clinic of Toronto General Hospital. This template is intended as a guide for you to use to notify other members of your family who may be at risk for inheriting the same heart condition you have.
 
If you have been diagnosed with an inherited heart condition and have had a positive genetic test result then you can use this template and substitute for the medical condition that describes you and the contact information of the specialist who is treating you. Please do not hesitate to contact The Canadian SADS Foundation if you have any questions or concerns:
Ph: 905-826-6303
Toll Free: 877-525-5995
email: info@sads.ca


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