1 in 500
Living with HCM
1 in 2,500
Born with Long QT Syndrome
At Least 600
Under age 35 die annually
Reported warning signs

SADS Warning Signs

  • Fainting (syncope) or seizure during physical activity.
  • Fainting (syncope) or seizure resulting from emotional excitement, emotional distress, or startle.
  • Family history of unexpected sudden death during physical activity or during a seizure, or any other unexplained sudden death of an otherwise healthy young person.

Featured Publications

LQTS: An Information Booklet for Patients and Their Families

This booklet has been written in an easy to read, patient friendly format and provides excellent information for those diagnosed with LQTS.


Long QT Syndrome in Women

As a woman with LQTS, your risk of experiencing symptoms may change at different stages of your life. Please read further...


Cardiac Channelopathies: An Information Booklet for Patients and Their Families

This publication is an excellent summary of several cardiac channelopathies including LQTS, CPVT and others.


Upcoming Events

Join us For a Patient Information Day

October 20, 2018

Please join us in Toronto October 20, 2018: Peter Munk Cardiac Centre, Toronto General Hospital

Read More

Latest News

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MIDLAND – The quick thinking of teammates – and ready access to an automated external defibrillator...


Family Tree May Aid Treatment of Inherited Heart Disorders

(HealthDay News) — Researchers who used family trees dating back to 1811 to estimate the death risk for people with inherited heart rhythm disorders ...


FDA Safety Alert regarding medications

The U.S. Food and Drug Administration (FDA) recently informed healthcare professionals and the public that preliminary results from a recently completed clinical ...



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